Superhero

The Script wrote a song called "Superhero".

The chorus goes:

When you've been fighting for it all your life

You've been struggling to make things

Right

That's how a superhero learns to fly.

Gracie's been struggling to make things right at feeding therapy. 

Last Wednesday they changed the protocol on her to try to get her to use her tongue to put the food onto her teeth  and then bite down and crunch, first just one time and then increasing the bites. 

Sounds simple, right? Wrong. She struggled half the day Wednesday and ALL DAY Thursday to take just one bite. She had a half hour session with the clinic's director, Dr Keith Williams. She tried to do what he wanted- she let him put her fingers in her mouth- very invasive stuff. Never protested- just kept going back to her seat. Finally, in the last session she knocked it out of the ballpark!!

All day I was in agony. I watched her try so hard- unable to do what they wanted. I felt wretched and stuck- I can only imagine how SHE felt. It's horrible watching your child struggle- but she didn't let it get to her.

It's going to be at least another two weeks here at feeding . 

Dr Williams says to struggling parents: think about how many times a typical person has chewed from ages 2-7- You probably can't count them. Up to today Grace has had 79 chewing sessions. 

79.

So forget Iron Man and Captain Marvel-- Gracie is my superhero. 7 years old, wicked smart, nonverbal but she can solve problems and find different ways to communicate and spend weeks patiently learning to do something ALL of US TAKE FOR GRANTED.

That's how my superhero learns 

To fly.