Stressed Out

 

From Twenty-one Pilots song "Stressed Out"

Wish we could turn back time

To the good old days

When our momma sang us to sleep

Now we're stressed out"

Above you see Grace having a meltdown in the car while we were waiting for my Mac to get fixed at the Apple Store. We had been in the book store until Grace decided that she wanted an expensive pop up book that was in Spanish no less. She had to have that book and no other . 

Tears- throwing herself down- crying- 

This has been the norm since August when we started seizure Meds. Then when school started it continued and got worse. Not has bad as when she first was on Keppra before school. She was really not herself on that drug!!

She has three new factors that seemed to have thrown her upside down .

First the medicine; Second, full days at school; Third , stress ( from going to so many doctors, being in school etc.)

We thought we had a Great Leap Forward after completing Chew School. Since the epilepsy diagnosis it seems we've taken two steps back. Some days are really good but the bad ones are really bad.

I know some of the behaviors are just childish tantrums- but I think the face above has pain in it. 

But I don't know- because she can't tell me what is the matter. With the new Meds she can't say "this makes me feel funny. " "I don't feel good." "My tummy hurts."

It seems like she has to deal with so much already. I'm gonna say it:

It's not fair that she can't talk. 

In the words of Malka Bialystoker from the book "the Ice Cream 

Queen Of Orchard Street" ( a great read btw) " So sue me, darling"