It's been a rough couple of weeks.
Today I hit the Oreos before noon.
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Today was the second visit to the new pediatrician in 2 weeks. That would make it the 4th Doctor visit along with an ER visit and an x-Ray-- in 2 1/2 weeks.
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This is me today -- after Grace silently trashed the living room-- while I was looking up new pediatricians in the kitchen. Here is a closer look at the aftermath of Hurricane Grace
If u don't want all the gory details skip to the endπ
It started as a possible Urinary infection because of 2 accidents at school( Grace never had accidents)- so I took her to
Patient First and they gave an antibiotic. Then the following day/ I misunderstood her neurologist and took her to her old pediatrician - who did nothing. Then I got her into a new pediatrician that the neurologist recommended where she had more accidents who did nothing but clean her ears. So now we have three urine tests that show "something" and all get sent off for cultures that show "nothing". I kept her home the second Monday in a row because I thought she had a temp. She went to go and was doubled up in pain crying - she never does that- I'd give it an 8 or 9 on Baymax's pain scale -- so I took her to the children's ER-/ where we waited 2 hours for a Dr to do the same thing- say " there's something in the urine test" so we will send it off for a culture!!!! π΅π΅π΅
Add into all this 4 different seizure Meds in two months and all the effects they could possibly have!πππ
It's been a long two weeks.
Now I Checked with her developmental pediatrician thinks it might be gastrointestinal so we got the new ped to get her an X-ray - they said they'd send the scrip over to diagnostic so we could just go there the next day.
Guess what? No paperwork -AND the intake person at LVHN had to call them TWICE to get it. So we finally get the the X-ray, easy peasy. It comes back negative--ok.
This morning she had pain again. So we go back to the "new" ped. today. Grace had 3 accidents at the office. She has 0 accidents at Home! I tell the Dr this and the last culture came back negative and she STILL suggests a urologist!!! I'm feeling that if I tell her that Grace is from another planet she will probably say yes we'll watch it and see and maybe go to urologist!!!!!
Ok the ending:
It's hard to find doctors that fit your needs. It's near impossible to find a doctor that gets your 7 year old autistic- non verbal- epileptic child.
Frustration. Not being able to help your child when they are in pain. Your child not being able to communicate to you what is wrong.
Frustration.
Cookies.
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