Scare

Thought the ups outweighed the down til last nite. I went to put Grave to bed as usual and everything was fine right before I put her to bed. She just laid down on the floor and couldn't seem to move. I called her and told her to get in bed but she just laid there. Rachelle's voice in my head told me to video it and I guess it's good I did. She eventually lifted her arms to me to lift her up and I put her in bed- she sat up( which she never does) and kind of rolled her eyes till she started just blinking and nodded off sitting up ( which she never does)

Chris was at a meeting so I sent  the video to everybody. Rachelle told me to call the oncall triage center who told me to take her to the ER. So now she's asleep normally and I have to get her up which means it will take her forever to get back to sleep. Anyway she was really good at the ER but I had to work to keep her calm. No one but he therapists realizes just what that takes. I had to get her favorite video games - I had to hold her down- I had to play her music box music all in effort to keep her still because she was hooked up to a heart monitor. She normally paces in dr's offices. So now she couldn't even pace.

Th Dr eventually said it COULD have been a seizure but didn't fit all the criteria-he didn't feel the need to put her through tests at the time which I sort of was grateful for but now we still don't know anything.

So we went home and Chris gave her more melatonin and put her to bed. Melatonin only works ONCE a nite w/ Grace so I knew I would have to stay up with her till she was close to sleep anyway. That was not till after 11:30. She was back to herself today because the house looked like a hurricane went through it. 

I just write these things down as a document to myself so someday maybe she can talk to me about them. That's my hope anyway.

Now we can't get to the good neurologist till October- and so a new chapter begins.