Feeling like a balloon.


I went home after therapy with Gracie feeling..."deflated." Chris said I had my three days to bask in her success and now it's time to get over it and move on. And at therapy, sure enough, it was just that. Ok. I know there is along way to go, I guess I just wanted to savor the moment a little bit longer. We are going to limit the nutella, obviously. It crossed both of our minds that it would not be good if she decided the only thing she wanted to eat was nutella. But now I have to withhold it. And she is not eating anything else.
It sounds like I am complaining. I'm not though. It's just sometimes I feel like I am on a treadmill and not really moving. But I know Gracie's battles are small compared to some other kids. Even when I was with her in the hospital after she had her palate repaired, I was aware that there were some parents how had to spend days and even years in hospitals with their children. Gracie is not malnourished. She is happy. She is healthy and she is ours. SO we just keep going one day at a time and take the successes with the bad days!
Today was a bad day. So we take one more step and keep working tomorrow!

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