My big girl turned 9 today. 9. What am I going to do when she turns 19? it's so hard to believe that she came to us 8 years ago. Those 8 years just whooshed by. In a flash, she lost that baby look in her face and started to look grown up! Just like that! No warning, it just happened. I still wonder where my little girl went. She asked my if I really meant it when I tell her to stop growing-do I want her to be a baby like Gracie? I told her that all I mean when I say that is I wish I could slow down time so I can keep these moments a little longer. I found out just how quickly that innocent sweetness can be squashed by reality and I just want to keep the bubble there a little longer. Happy Birthday to my Joy. I missed one year of her life but I plan to make up for it for the rest of her life!
Daddy got his hands dirty at therapy today with Gracie. He tried to demonstrate his past success with Gracie to Tricia, naturally without as much success. She recovered her balance in the Moon Bounce and then came in for round 2 of feeding. We decided to not put any pressure on the second time, because she became pretty stressed in the first. Well, today she had a Hershey's syrup and oatmeal facial and full body scrub and she loved it! She actually dipped her finger in the hershey;s and put it right in her mouth herself four or five times!!!! She likes when Tricia gives her a deep massage with the syrup and then allows it to go on her face and in her mouth. It's amazing and DAD even got HIS hands DIRTY! Miss Tricia ( and mom) was amazed!!!
Then we had a meeting with Carey Anne, Tricia, Advent's dietician and house Doctor and another doctor to see what the next step is with Gracie. I am too tired to write about that now, so I'll do it tomorrow but I want to write down how Gracie reacted to Joy's little birthday celebration at Chuckie Cheese.
Joy Lin LOVES Chuckie Cheese so we took her BFF Kyra with us to celebrate since Dad had to head out for a class that had come up. Gracie was taking everything in. All the NOISE NOISE NOISE NOISE ( as the Grinch would say) and the lights and at first it was ok. Then Dad took her to try one of the kids rides. She came back crying. I don't know what set her off. But it all proved to be too much stimulation and she started to shut down. I covered her ear and she snuggled up in my arms with her blanket and she fell asleep. This is her defense mechanism when things become too much to handle. I felt bad for her. ( the funny thing is it's the exact way I feel when I go to Chuckie Cheese!) She did it when we first started at Advent and hasn't done it in a while but I know that's what she was doing.
Each day is a new experience for both of us!! Actually All of us!!
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