Two weeks ago, Grace had her yearly all-around check up at CHOP, where she sees her cleft surgeon, along with an ENT, speech therapist, anthropologist, audiologist and dentist check how she is doing. The last doc was the anthropologist , who took measurements of her head. She talked to us before we left, because Grace's head growth jumped a percentile in a year. I guess the growth wasn't unusual but the time period that it occurred in set off a warning bell. So when all of the team members got together, several of Gracie's traits put together signaled a need for a Neurology exam. They were concerned that there might be pressure on the brain.
SO as per Dr. Lowe's nurse, I attempted to make an appointment with Neuro. Both the nurse and my pediatrician were skeptical that I would even get an appointment that wasn't a year away. Well, I did. For today. I thought this was great and we could start to formulate some answers. So I waited anxiously all week.
Then we got there today and the Dr. walks in and says, basically, "So what brings you here today?!" I looked at her in disbelief and related what Meg had told me. The Dr. said there was no information on her record to suggest a reason for this visit?!?!?!? I found that very hard to believe after Meg had been so thorough with telling me what they thought was going on. At least the Dr. did what the team wanted and asked for an MRI. I was so ticked off. They were in the same building and she wouldn't even make an attempt to contact them.
So I tried to talk to Meg before we left but she was in a meeting. At any rate she returned my call and I told her what happened. She seemed sincerely apologetic and told me she would make sure they knew what was going on with Gracie. So tomorrow I schedule the MRI and then see what happens from there.
Poor kid. Hasn't she gone through enough?
